Someone just asked me how I got through the challenges of my own illness – here’s my reply:
One of the first things I learnt when I was struggling with low energy levels, muscle pain and more, was not to struggle!
Struggling wastes energy. Getting angry wastes energy, so does getting upset or frustrated. Though my condition wasn’t diagnosed as CFS, it mirrored many of the symptoms of CFS, and on the days when fatigue wiped away any notion of going anywhere, I would not let it add to that sentence “and doing anything.”
I might physically be going nowhere, but the rest of my life was moving as best it could. I got a marker pen and wrote on the whiteboard in my little home office “do what you can, where you are, with what you have” and, to the best of my ability I did. When I was in my office and able to write or work on the recording projects I was engaged in at that time, I would read my message and try to live it. On the days when I didn’t even see my office because I was stuck in bed, I’d realise all I could do was rest, and I’d try and do that well, and that meant no seething under the sheets that I wasn’t somewhere else, doing something else. I was here and I had to do the best I could with that.
Some days I was better at it than others, but that was always my motto, and I believe it helped get me through.
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